Ribbons Green, Pink & Yellow
Subscribe to:
Post Comments (Atom)
Total Pageviews
Lethal Language, Lethal Decisions
Search Google Scholar for Trisomy 13 & Patau Syndrome Current and outdated Literature
Add This
Help us SHARE Trisomy 13 archived site and current support.
Search This Blog
Trisomy 13 Awarenes, Information Package
A Change in Awareness ~ Yes We Can, with Dignity and Grace
HOPE, not false hope, REALISTIC HOPE of time with your child.
Add our blog button to your site!
Prenatal Testing Ad's and How the results may send you on a "Futile to treat" healthcare policy.
EHD in Utero movies..AMAZING!
Visit these Trisomy 13 Patau Syndrome Family Blogs
Embracing Life ~ One Moment at a Time
- Trisomy 13 - Patau Syndrome Support
- August 25th 2000... and they said "she has trisomy 13, and she would probably not survive the week..." and I said, "well she's alive and we will treat her as I would any of my living children, we would do what we could with Prayers, Love and Medical Technology..." and here we are 11+ years later... :) About the Photo: Natalia 5years old - Full Trisomy 13 - Patau Syndrome - Kindergarden at Blind Children's Learning Center, Tustin, California http://blindkids.org (*I highly recommend this Early Intervention Program for the Visually Impaired) *At birth we were told of the Causes of Trisomy 13. We were told the risk factors, prognosis, and life expectancy. We chose treatment, looking at each individual medical symptom. Choosing to treat the symptoms not the syndrome. One day at a time, we have Triumphed over Trisomy 13! To view more than 300 families who Share their Child's 'Unique Life Journey' within their story and pictures go to: http://www.livingwithtri13.org http://www.trisomy13archive.com
0 comments:
Post a Comment
Anonymous posts are not accepted.