our trisomy journey- God's gift of jedidiah joseph
quick update
i just have a moment for a quick update on jedi.
he's doing amazingly and miraculously well. he sleeps well. when
awake he locks in on people when they talk to him and tracks your
voice. he is tolerating the feeding tube- feedings go smoothly, no
spitting up or aspirating.
he does have problems with apnea- when he just stops breathing- but
he's much improved since the first night- about 6-7 episodes then.
he's not on oxygen except for after an apnea episode- just to get him
pink again.
and he's just such a little bundle of love. his skin is velvety
smooth and his hair is old-man style- balding on top and kind of
kinky, dark brown, and long-ish around the back and sides.
he enjoys skin to skin, especially with daddy since he's got the
higher body temperature of the both of us. and i am working on
getting a milk supply up so that jedi can get some home made goodness
soon.the prayer request for today is thanksgiving. so many times we are
quick to ask for friends to pray for our needs, wants, desires- but
fail to ask them to join us in thanksgiving.
so please- let God hear your voice today- thank Him for His many many
blessings.
he's doing amazingly and miraculously well. he sleeps well. when
awake he locks in on people when they talk to him and tracks your
voice. he is tolerating the feeding tube- feedings go smoothly, no
spitting up or aspirating.
he does have problems with apnea- when he just stops breathing- but
he's much improved since the first night- about 6-7 episodes then.
he's not on oxygen except for after an apnea episode- just to get him
pink again.
and he's just such a little bundle of love. his skin is velvety
smooth and his hair is old-man style- balding on top and kind of
kinky, dark brown, and long-ish around the back and sides.
he enjoys skin to skin, especially with daddy since he's got the
higher body temperature of the both of us. and i am working on
getting a milk supply up so that jedi can get some home made goodness
soon.the prayer request for today is thanksgiving. so many times we are
quick to ask for friends to pray for our needs, wants, desires- but
fail to ask them to join us in thanksgiving.
so please- let God hear your voice today- thank Him for His many many
blessings.
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