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Trisomy 13 (Patau Syndrome) Website Support Resources
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- Trisomy 13 - Patau Syndrome Support
- August 25th 2000... and they said "she has trisomy 13, and she would probably not survive the week..." and I said, "well she's alive and we will treat her as I would any of my living children, we would do what we could with Prayers, Love and Medical Technology..." and here we are 11+ years later... :) About the Photo: Natalia 5years old - Full Trisomy 13 - Patau Syndrome - Kindergarden at Blind Children's Learning Center, Tustin, California http://blindkids.org (*I highly recommend this Early Intervention Program for the Visually Impaired) *At birth we were told of the Causes of Trisomy 13. We were told the risk factors, prognosis, and life expectancy. We chose treatment, looking at each individual medical symptom. Choosing to treat the symptoms not the syndrome. One day at a time, we have Triumphed over Trisomy 13! To view more than 300 families who Share their Child's 'Unique Life Journey' within their story and pictures go to: http://www.trisomy13archive.com For Trisomy 18, 13 and Related Support, Please see the SOFT site for a NEW Family Packet http://www.trisomy.org
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